Benton was recently
frontal lobe epilepsy.
He remains hospitalized until he is able to go 24 hours without a seizure.
March 2022 from Benton's Parents:
Life has a way of throwing you a curve ball when you least expect it and our family unit can certainly attest to that this past week. Nearly two weeks ago, Benton started acting a little off telling us something wasn't right with our Benny Bear. Last Wednesday we made the drive to Children's Hospital where he was diagnosed with frontal lobe epilepsy.
This type of seizure can presents
so differently from what most
people think seizures look like.
Just Friday evening Benton was
experiencing multiple flurries of
cluster seizures, a total of fifteen
seizures presenting in as little as
thirty minutes. It's heart wrenching
to watch your child suffer and all
you can do is hold their little hand.
In order to even discuss going
home, we need to go at least
24 hours seizure free AND find the
correct "recipe" of medications
that reduce seizure frequency
while having little side effects.
We have a lot of uncertainty right
now. We could really use a miracle.
Thank you everyone for the out
pouring of love and support for our
family at this time.
We have unexplainable peace while being held in the arms of our Father.
Much love, The Giedd Fam
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