UPDATE: Oliver turned 6 months old on July 6th! He is still in the Children's Hospital of Seattle and is capturing the hearts of all of the nurses on his floor. He's growing stronger every day and has even started sprouting some teeth! Recently, Ollie's medical team began casting for his club feet. He'll wear the casts for 6-8 weeks. So far, he doesn't seem to mind the casts too much and his dad, Tony, is having fun drawing fun pictures on the casts. Sara and Tony have been approved for in-home nursing care and are currently waiting to find nurses to interview. They are hoping to bring Oliver home in early August.
Each day brings promise and hope that Ollie can begin to experience life outside of his hospital room. Sara is looking forward to walks and stroller rides on the hospital floor and eventually getting some approved trips outside.
Once home, Oliver’s condition will require an in-home nurse to assist with his daily care.
From Oliver's Gramma Chrystal:
Oliver (Ollie) was born on January 6, 2021 to Sara and Tony. Sara’s dad Warren and step-mother, Chrystal, are residents of Eau Claire, WI and are Ollie’s proud grandpa and grandma. Prior to Ollie’s birth, Sara and Tony were informed that he would likely be born with health complications and were advised to seek medical services in Seattle. Days after his birth, a team of specialists diagnosed Ollie with a rare disorder known as Campomelic Dysplasia. Most babies with this condition don’t live past infancy. Sara and Tony’s doctors prepared them for the worst but Ollie has already beaten a lot of odds!
Ollie was born with a small chest cavity which restricts his lungs. His upper airway is underdeveloped and he has a small hole in his soft palate which makes breathing difficult. Ollie underwent surgery to have a tracheostomy tube placed into his windpipe which allows air to enter his lungs and helps him breathe easier. In addition to his respiratory issues, Ollie was also born with bowed legs, clubfeet, underdeveloped shoulder blades as well as a small jaw and chin. There will be many more surgeries that will take place in the years to come to correct these issues. Despite all of Ollie’s medical challenges, Sara and Tony remain remarkably optimistic!
In the meantime, with the help of hospital staff, Sara and Tony are training to become “certified caregivers” so that they can continue Ollie’s trach care at home.
On behalf of Sara and Tony, we want to extend a message of gratitude to The Neighborhood for the opportunity to share Oliver’s story and to those who find it in their hearts to help. We ask that you pray for Ollie as he continues his medical journey and for Sara and Tony for strength, courage and guidance.